Friday, November 20, 2009

REALLY fast week!

What an awesome time I had with my Sarah!!! The first day we watched movies and lounged all day because she had a red eye flight. This with OK with both of us, it was just like old times in NC, when we would curl up on the couch and spend the day dozing off in between drinking coffee , and chatting away. We could literally do that all day! Anyway, later that night we ordered a pizza and had quite the scare due to my husband having nothing better to do with his time. Let’s just say she and I ended up sleeping together and I slept with a huge crucifix around my neck, hiding under the covers! After searching the internet for hours, I realized that the I phone has many ridiculous apps, one that almost left my husband out in the cold! Lets’ just leave it at that and I guarantee you he will never pull such a thing with me or anybody else ever again!

Now back to Sarah and I. Tuesday we hit the historic town of Concord MA, right up the street from us and we actually spent quite a bit of time there. It is nuts how much history is right in my back yard. I learn something new every time someone comes to visit. Yesterday Sarah, her mom and I headed up to Glouster and Rockport Ma. We stopped by one of my favorite little diners and I introduced Sarah to lobster bisque…delicious!!!! She loved it. In between sightseeing, I think we spent the majority of our time laughing. Her mom would even get to laughing so hard. She probably had no idea what was going on, but just watching us crack up, rubbed off on her and before you knew it she was cracking up too!

Unfortunately they headed back last night. It was a very short trip, but any time I get to spend with my Sarah is a great time. She is truly like a sister to me and I already miss her like crazy!

Today the countdown begins! We leave for VA on Sunday. I cannot wait! I have family coming up from Fl and down from PA. It is going to be a blast! There is never a dull moment when the Evans get together. I am truly blessed to have such a great family and I am looking forward to seeing everyone and of course laughing the entire time! Alright well I have a lot to do before Sunday, I am out word!

Saturday, November 14, 2009

Fine with me..

Rain, wind and drama makes for a quiet Saturday! To be honest with you I am so OK with this outcome. I mentioned tonight was going to be girls night out in Bean town. My K called me last night to inform me that is was cancelled last minute. I was kind of confused seeing all the email feeds I received all week long, leading up to last night. Bottom line, when you get 30 women together there is bound to me drama:)

All I know is two of the ladies are not getting along for whatever petty reason. Therefore, half of the ladies are friends with one, while the other half are friends with the other. Apparently no one wanted to take sides and the party bus was cancelled. You would think at our age, people would know how to “play nice”. I guess that is not the case. I am not getting involved and K and I have decided to go have a girl’s dinner at the Cheesecake Factory. Now this is my kind of night, drama free, good food and being with my bffl having a lot of laughs.

The more I think about it, I realize that I am getting older. Staying out until all hours of the night just doesn’t agree with me anymore. It takes ten times longer to recover and get motivated the next day. When I was in my early 20’s, we would do that every Fri and Sat night. I would even feel so good that the next day, my friends and I would do it all over again starting early afternoon and go all night. I have a feeling those days are gone and to be honest with you, that is fine with me! It would have been fun to get out, hang with the ladies but most of all to dance. But who says a dance party can’t go down at Kelly Lane while I do my house chores today?? LOL…Hope everyone has a great weekend. I am out…word!

Friday, November 13, 2009

THANK YOU MAGICAL ANTIBIOTIC:)

I mentioned I have a lot of great things coming up in these next few weeks. Saturday night is supposed to be the first fun event going to happen. It was planned over a month ago. It is going to be ladies night out! Husbands are going to be left home, everyone with kids have sitters and we have rented a party bus to get us around town. I haven’t been out like this in years!! I am just excited to dress cute and do my favorite thing ever…Dance..Dance..Dance! If I have to justify my actions for going out, it will be that dancing is the best exercise ever. And that the lung transplant team is very adamant about me exercising. So there you go, I am just exercising my lungs. LOL! I won’t be partying like the other ladies will be, but it will do me good to get out and have a lot of laughs.

Getting ready for a night like this Saturday, means going all out for me, which includes, a box of hair color to cover my greys, a new shirt from TJ Max and having my girlfriend do my eyebrows! I said to myself, like I say to Jason, “Who do I think I am a freaking Rockafella?” < Insert sarcasm> I am the most frugal person you know, trust me this is big for me. I am determined to go and I can’t wait! I am finally feeling like myself again. The antibiotic has kicked in; now all I need is my ridiculous energy back! I know that will come too in time.

Now the only issue I have is that at my appointment on Monday my weight was a soaking wet 100lbs! Unlike the normal population, I can’t stand losing weight! My butt and legs are the first thing to go, which means my jeans do not fit me right anymore. My original outfit I planned was leggings with my “big girl’ boots over them, with my long top. (I love the style that is coming back) The top is still a go, but the pants are my issue. The other women will have hot fitted pants and look their age. Me on the other hand, will look like A) A teeny bopper trying to look like a grown up and I will be carded and double looked at all night or B.) I spend my entire life in the bathroom with my finger down my throat. Neither of these things appeal to me! I cannot stand being almost 30 years old and wearing double zero and shopping in junior/kids! I know a lot of people say, “You will appreciate it one day.” Can someone please let me know when that day is, because I am not feeling it! OK enough complaining for one day, I will figure something out.
Hmmm, wait, I got it!!!

I have learned a fashion tip on TLC’s “What Not to Wear.” That is to put more emphasis on the part of your body that you are most comfortable with. That clearly would not be my lower part at this point. Maybe I will load the makeup on, do a sassy do to my hair and find a magical miracle bra to do the trick! Then from the hips down, no one will pay much attention. That is the smartest thing I have thought about in days:) Alright I am out…word! Oh yeah PS: If the weather is going to be absolutely nasty, I will not be going.

Tuesday, November 10, 2009

Not in the mood!

Wednesday, Thursday, Friday, and last Saturday afternoon I finally started feeling like myself again. My girl K and her daughters came over for dinner Saturday night and we had a lot of laughs and a great time. Towards the end of dinner I felt exhausted. I just figured it was my first full day of staying up and motivated, no biggie. Saturday night I felt so blah in the night. When I woke up Sunday, my glands were huge, voice was gone and my chest was so sore! Awesome I thought to myself, too good to be true that I kicked this thing without any respiratory problems. Sunday was a washout and yesterday I spent all morning at follow up appointments.

Good news: ENT was pleased that the Gentomycin resolved my sinus infection and I just have to finish one more week of it. He also looked at my throat with a scope to make sure there wasn’t anything causing my loss of voice such as infection or mold on the vocal cords. < Insert throw up noise> that is just nasty. But seeing it has only been a week and a half since I stopped my anti fungal medicine he was just being safe. Good call, I was finished with him and headed to transplant clinic.

To make a long story short, my Dr. was not surprised in what is going on with me. She said that after the flu virus, Bronchitis and Pneumonia are pretty common. Thankfully it is not Pneumonia and is just Bronchitis. They are going to be proactive and treat it as Pneumonia though. Being immune compromised they don’t want to play around. Once again, good call on their part! The only issue they had yesterday was the decision on what antibiotic to use. I have become resistant and or allergic to literally almost every class of antibiotics used for my CF bugs. They can do what is called desensitization to the drugs I have built allergies to. Last time this was done, it worked for about seven days into the course of treatment and then my body said, “Tah I am done with this antibiotic!” I got Angelina Jolie lips, freaked out the nurses and was again pulled off the med.. LOL! Needless to say, it is now back on my allergy list. I hope they save the other one I am allergic to, for when I get pneumonia again and it is really needed. I think that is what they are going to do.

After about 30 minutes of them discussing what to do, they came back and told me the drug Clindamycin was a go! Strange that Tobramycin isn’t used on me anymore but this drug is. ( Gentomycin rinses too I can use) I thought they fell within the same family but I may be wrong. Anyway, I am on this for 10 days, along with Atrovent and Albuterol nebulizers as needed. I know I will be bouncing off the walls with these nebs!!! All I know is that I was just completely relieved that I am able to use the antibiotic! Whew…there is nothing scarier then knowing that the antibiotics you need, are not an option anymore. After years of use, my body gets fed up with these meds and builds a tolerance or becomes allergic to them. I guess stubborn is not just my personality, but is in my blood!:)

I have way too much coming up for me to be back on my tail! This sat night (big night), my Sarah fly’s in from CA Sun, and then VA for Thanksgiving. Seriously, come on immune system do your thing! I am not in the mood to feel like this again! I am out..word!

Thursday, November 5, 2009

Stick with me:)

Let’s start off with where I left off yesterday. I left off with me being “wife of the year” to my sick husband. Thankfully and luckily it was only a twenty four hour bug. As I told him when he woke up bright eyed and back to himself today, “Must be nice to have a good immune system!” “Good for you!” He laughed and told me not to be jealous. I must say deep down inside I was a little bit jealous he was over it in a matter of hours. Of course I had to get the last word in and I did:) I honestly know we are young but I learned something yesterday, there is no way we could be under one roof 24/7! I have my routine and he just goes stir crazy!! Whether it is the lottery or retirement, there is no way we could replay yesterday, every day. We would end up killing each other. LOL…I would have to take up a new hobby, adopt some kids or something. Watching him go from the couch to the kitchen all day drove me nuts. And no offense to men but they are such babies when they are sick! Fine if you got a stomach bug, gotcha! Rest and take it easy. But do me a favor, knock that whiney voice off, I am not your mom and if you haven’t learned by now, you are whining to the wrong gal! Love you babe, thank God you were better today or maybe you weren’t and just wanted to get away from the “wife of the year”! He probably couldn’t get to work fast enough! LOL….

During our quality time together yesterday, he fell asleep and that was my chance to get out for a bit. It was only my first day feeling better but Dunkin Donuts was calling my name. I haven’t been out of the house for over a week so I was wicked excited to get a coffee. I didn’t mask up because my fever had been gone for a few days, so I figured I am not all “Swined up” anymore. This is nasty so if you have a weak stomach go to the next paragraph. I am standing in line at Dunkin and I started to feel my nose start to run, as I put my hand to my nose and sniffed, I realized I had a full out nose bleed. Great!!! Now I looked like a skinny, drug addict that can’t control her nose. I left and had to take care of it at the car. Once it stopped, I sanitized all up and went back in determined to get my coffee fix!!! Here I thought the Swine mask would of freaked people out, imagine seeing that! LOL…so attractive! I am flushing my sinuses out for the next 21 days with Gentomycin…yeah doesn’t feel so good. But that was the cause of my big Dunkin incident yesterday!

Today I felt really motivated, so I caught up around the house and knew by looking at all the food that was not in our fridge, time for big shopping day. By the time I was dressed and ready I was too tired to take care of that project. So I grabbed my first solid meal in a week, from MC D’s and had lunch with my bff Karen. It was so good to catch up on what I have missed out on in just a week. By the time I got home, my voice started to disappear and I realized I needed to chill out.

Jason is still not home but when hears my voice and see’s my glands, I am going to get the third degree. He is going to blame this on me and make it sound like I played in traffic all day and over did it. Oooh I know, I can make it sound like, I had to grocery shop for him, so he could eat well. Wait that won’t go over well because he will open the fridge and realize nothing new is in it. Maybe I just spread out the cheese and veggies to fill in the empty space, I’m just kidding. LOL!! STICK WITH ME!!!I am out…word!

Wednesday, November 4, 2009

Is it finally gone??

Stinky ol’ swine flu! I literally lost a week of my "busy life"! Halloween was a wash out, my 8th anniversary gone and I think on top of that, I can’t remember the last time my body really had to fight something off on its own. Now “Tami” aka Tamiflu has always been on my side, but she left me high and dry to fight this one on my own. I think the only thing she helped out with was taking away my fever. Other than that, every other day I woke up with what symptom was going to take effect on my body that day? I have never had a bug where every day something new appeared. One day sore throat and chills, the next day the stomach part, the next day a headache like you would not believe! Every day it was something different. The only thing in common every day is that I was completely wiped out! Even though the hospital gave me the boot on Friday and didn’t want me anywhere near them, every morning I woke up and wondered was this the day where club med was going to have to take me as a patient because this body was running on E??

The swine was also very tricky. Like yesterday I woke up and said to myself, “It is finally gone!” I got up and ran a load of laundry and was so excited I even made A phone call. Then within an hour of my motivation, “TAHHHH, NO ENERGY FOR YOU!” That swine said, “JUST KIDDING!!! YOU’RE GOING BACK TO BED FOR THE DAY!” That’s where I ended up. So much for getting up and catching up on cell phone texts and calls, Facebook and Blogspot…UNFREAKINBELIEVABLE! I have been out of touch with the world for a week and it is time to get back to myself. Maybe today will be the day...we will see.

On a side note, my husband is up for adoption. Anyone want him for a little bit? God love him, he was so good to me this entire week. Around 11 last night, I heard a loud roaring noise coming from the bathroom. As I listened, I knew I have heard that before. It was Jason, throwing up wicked violently! Me being wife of the year, waited for him to finish up. I could barely lift my head off the pillow myself, when he was finished, “ I yelled, babe are you throwing up?” Clearly, that is what was going on. After he responded, “I said get the bleach and bleach the bathroom and open all the windows!” This is all we need is to pass this mess back and forth to each other! Maybe I would have been more sympathetic but throw me a freakin bone, I am getting over the H1N1! LOL..I need to not let him forget that is what I have had to deal with this past week. HMMM!!! Needless to say we are in separate rooms and he is waiting for his boss to call him back. It is what it is! I am out…word!!!

Saturday, October 31, 2009

Swine...shmine

This week has flown by with my time with mom. We would do small things and I would become exhausted! Thursday night I made lasagna and my godmother and Grandma and Grandpa Cook joined us. When I was finished with my plate, I was trying my hardest to keep my eyes open. I literally felt like someone shot me with a blow dart. It was only 6:30, but I excused myself and hit the bed. When I woke up the next morning, my sheets were soaked. I knew I must have broken a fever in the night. I also knew I HAD to feel well for the annual Halloween party at the club on base. I had a hot nurse costume with a blonde wig and red fish net stockings! My girlfriends were going to go up there and then crash at my house. I have been looking forward to this for a while. My plans were rest during the day and push myself to make it to the club that evening. Not happening!

By 1pm I felt horrible. My body hurt and I was more than exhausted! I fell asleep and awoke with a 101 fever. I was sick. Darn it, no getting to play dress up that night. I probably picked something up going in and out of appointments these past two weeks. I have been washing my hands every five minutes but apparently that didn’t work for me. I have lost 7 lbs in two weeks and I now had a fever…time to call my coordinator. She must of left for the day because my fabulous Dr. called me right back. She wanted to see me right away. So mom and I headed into Boston. I must say we made record timing and mom possibly had the highest blood pressure in the city from my driving..LOL!

After I saw my TX doctor, she decided to admit me and start me on IV antibiotics. The problem is that I am allergic to almost all C.F IV antibiotics and this is a big problem. So while she paged infectious disease, one of my favorite inpatient PA’s came in to get all my admitting papers ready. She asked if I had the annual flu shot? I replied, “Yes.” I won’t wear a mask then. We chatted for a bit and then the Dr. returned. She asked the PA who I just love, “Where is you mask?” She said, "She had the flu shot." and the Dr. informed her not the H1N1. Let me tell you how quickly she left the room, poor thing! At that point infectious disease came in and swabbed both sides of my nose. Because I had the regular flu shot they are aiming towards the H1N1. The results will be in this weekend. He really thinks that is what it is and he prescribed me Tamiflu. If within 48 hours I still have no change they want to see me back. The main thing is that if I begin to have any type of wet cough, immediately call them. The basic flu symptoms aren’t what are dangerous. It is when it turns into pneumonia and the lungs start to suffer. I think we caught this early enough and I will continue to rest and take the magic drug Tamiflu. The Dr. also recommended Jason and my mom take Tamilfu too. Just because they have been around me and this is the way they stay on top of the H1N1. If you ever want to get kicked out of the hospital, just get diagnosed with the flu, especially the swine! LOL

Mom heads back tomorrow:) I sure am going to miss her this time. Alright I am exhausted just writing made me feel like a ran a mile, I am worn out! I am out…word!!!

Wednesday, October 28, 2009

Hump day...

I got back to town on Saturday afternoon. My surprise I brought back was my mom:) I couldn't write that because I wasn't sure if her sister was going to read this. We decided to show up at her church Sunday morning and mom walked down the aisle and sat down beside her! She was so excited!! After church, all of my cousins, aunt and uncle all went out for lunch. We had a lot of laughs. Sunday when we were getting ready for church mom said, " I should borrow you Halloween wig and just go and sit by her!" I replied, " Mom she would probably hold her purse real tight and wonder who is this hooker sitting so close to me!" LOL...No that is not what I am going to be for Halloween, but the wig just isn't, lets say natural.

Monday we kind of just laid low at the house. I have been extremly tired and my appetite is shot. So I slept a majority of the day. That evening when Jay got off of work, we headed up to my cousin's in NH for dinner. Jason was on a roll that night, everyone was laughing! After a yummy dinner we headed back and crashed or at least I did.

Yesterday mom and I went to our favorite store and she bought me a very nice winter jacket. I will probablly wear it today. It is cold and rainy. After we went shopping, we grabbed lunch, rented a movie and I came home and once again I slept. After a wonderful chicken dinner ma made we watched "The Proposal" I highly reccomend it! It was hillarious!

I need to get ready to head to my infectious disease appointment. They are going to see if I am able to get off the mold medicine. I hope they don't say anything about the fatigue and weight loss, we will see. Alright...I am out....word!

Friday, October 23, 2009

On the go again...

Missing in Action….but I am back now. On Monday I received a call from dad and he informed me that his uncle had passed away. After five years of suffering with the terrible disease Alzheimer's , his suffering finally came to an end and at the age of 86 he is now in moved onto a better place and is at peace now. When I would visit PA, I would visit him with my dad and Pappy when he was still alive. He was so soft spoken and such a hard working, kind man. He really reminded me of my Pappy in so many ways. I went to the nursing home about a year ago and he really was bad off. This is one disease that I hope in the future they will find a cure for it. My Nana suffered with this for years and I was with her when she died. I have been around many types of illnesses but this one really bothers me. I think it is the whole mind deterioration that is the worst part. No one deserves to go through what Alzheimer's patients go through. God bless anyone who has this terrible disease!

I woke up around 4:45 yesterday morning and headed to PA. It was a nice ride down. All of my aunts and uncles except for two, who are out of the country, were at my Grammy’s. I always enjoy seeing them. My cousin also came up, so he and I had quite of few laughs and hung out. After the funeral, we were following everyone and heading to a restaurant. My amazing 86 year old Gram looked at her son in the car and said, “I need to go home, I am feeling sick.” I told him he should go ahead to the luncheon, especially seeing it was his uncle. “I will take Grammy home.” Just then we passed my parents in their car and mom came back to the house with us. We got Gram changed into comfy clothes and she laid down, for what I thought was going to be a while. I went into the back room and CRASHED! When I woke up two hours later, dad was back and mom looked a little overwhelmed. I had to laugh because; I asked mom “Did everyone have a good nap?” She replied, “Dave can you please pour me a glass of wine?” That answered that. My Grammy was up the entire two hours I was sleeping and it was just her and mom. Poor Grammy, she can’t see and her mind is slowly going. It is like hanging out with a confused child. It breaks my heart! I love her to death and I can see a change even since the last time I visited. God love her…I hope her mind doesn’t continue to go. My uncle stays with her 24/7 when company isn’t here. That man has the gift of patience and he is so good with her.

I am heading back to MA tomorrow and I am bringing back a surprise with me. No it is not a baby or anything…lol! I just can’t say because certain people read this and I don’t want to give it away. Let’s just say I am super excited. Alright I am out, word! Oh and PS: Apparently Facebook doesn’t work where I am…I am having withdrawals. I will have to use my phone to log on.

Saturday, October 17, 2009

It is what it is:)

This week had to be the fastest week this month! I had a great time with my girlfriend Sara all week. We stayed busy and had a lot of laughs like we always do when we are together. She flew back to Colorado on Thursday night and for the first time in well over a month Jay and I were back to just the two of us. We sat down to watch TV that night and it was so quiet and stress free we had to just sit back and unwind. The adrenalin we both had been running on since September finally had run out. Thursday night I still didn’t get a good night’s rest. By the time last night came around, I finally crashed.

It sounds strange but when a lot is going on, my mind stays busy and I feel like I have to know everything is taken care of and I am not able to relax. It is like I am anxious all the time. I can honestly say I never used to be this way, but over the past few years anxiety has become a huge part of my life. My doctors have placed me on my “crazy medicine”…aka anti-anxiety medicine. LOL! Their main concern was that when immune compromised patients are constantly anxious, to where the heart rate is raised and it causes extra stress on the body, it actually compromises the immune system even more. This would be putting me at more risk of catching and being unable to fight off infection. I would have never believed this but anytime I become over tired or completely stressed out, my glands begin to react and become much enlarged. This is my warning sign to slow down and that my body is on “over drive mode”. It makes complete sense! I never thought, “Strong Lori” would be placed on such a pill. But if it lowers my heart rate and helps prevent me from overdoing it, I will just add it to my pill collection and call it a day. It is what it is and after 29 years of craziness, maybe my body needs a little help unwinding. Don’t misunderstand me, it doesn’t take life stresses away, you still have to deal with stressful situations. It just helps the body respond better to these situations. You still have to put your emotions in check and deal with life. Trust me I would be living large if I found a pill to take away life’s tough realities. Let me know if that ever hits the market:)

It is freezing today! Yesterday I woke up to snow falling. Burr!! I hope this is not a prediction to a long winter ahead. On Thursday I actually put all out patio stuff away for the winter. Good call on my part…alright I am out..word!